This last week has been one of those that comes my way now and again: a full working week. 9-5, Monday to Friday. People, I have no idea how you do it. I love, love, love my job, so I enjoyed every single moment of it – especially the one when a delegate awarded me 11 out of 10 – but as it is pretty intense, the danger is that I take my eye off other things. Like my arm.
The new PICC and I have been getting along quite happily, although the last time I had herceptin Jo noticed that my skin is becoming irritated by the coating on the line. I had noticed my skin becoming red and sore but had put it down to wear and tear and the line being rubbed against my arm.
If I’d been paying attention this week, I’d have noticed that my arm was getting redder. But I didn’t. I did notice it getting itchy, though, so tried a smaller dressing. I noticed it getting a little bit sore by Friday, because every time I raised my arm to write on the flip chart I was brought up short by a little ache.
This morning – while I was off being a pop star in a recording studio in Islington, of which much more later – I did notice an increasing ache. Joy had to carry my bag for me. Every time I bumped or raised my arm I winced. When I came home I took the dressing off and there had been quite a lot of weeping under there. And the whole area where the line goes into my arm is red, and hard, and sore.
Alan and I thought the line was either infected or reacting under the skin in the same way it is above. So we called the hospital to speak to the oncologist, and – credit where credit is due – she called back within the hour, and apologised for not calling me back sooner.
I explained what was happening, and said that I didn’t consider this an emergency but neither did i think it wise to wait until Monday before getting in touch. We agreed that I will go into hospital in the morning to get it looked at, unless I develop a fever, in which case we will reassess. (‘Late morning,’ said the oncologist. ‘After ‘The Archers’?’ I asked. ‘Perfect,’ said the oncologist. Only in England.)
Here’s what’s interesting about this (unless you have a particular interest in weeping PICC-based arm nastiness): before I had even picked up the phone to the oncologist, my brain had come up with a quick equation:
x = a + b + c + d + e
where:
a=all of the problems with the drug trial that was a substitute from herceptin
b=all of the problems getting cannulated
c=heart worries
d=[joint aches, muscle pains, cramp, sleepless nights, nausea, diahorrea]
e=now this horribly inflamed arm
mean that x = my thought that maybe, finally, this is the thing that will make everyone say ‘enough is enough’ as far as herceptin goes.
I ran my equation past Alan. His eyebrows said that he’s not convinced that my proof is correct. He’s probably right.
I am getting hot though. I’ll let you know what happens.
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As someone who has had sepsis, please keep taking your temp, draw a line round the redness and if it gets any bigger tonight, please please go in.
In the 4 hours whilst waiting for a bed, I went from Lucid, to unconcious and my body shut down, I was pushing 42 C for a temp and seeing pink elephants. Infection spreads fast and once it has a hold then it is hard to get rid of. Please listen to me on this one.
totally agree with The Mad House sepsis is nasty. May seem odd but drawing around redness and making note of time is good idea and will help docs if an infection is present. Take Care
Hope you are feeling better, and got some sleep.
I’m making use of the fact I can’t sleep to catch up on chores before going up to York to support Chuck while he delivers training, its not he needs help, its just nice watching other work.
If you need some more maths equations to think about you could work out the area of mud two kittens, both with big feet, and a cat flap can bring in and deposit on every surface in the house… don’t bother working out the probability of me cleaning it up before the Archers its zero.
Thinking of you
Em
I didh’t know my eyebrows were so expressive, although I have known for years that I should never play poker (Methodist upbringing aside) as I would have more tells than Jackanory.
However, whatever they told you yesterday I hope you’ll agree that I thought there was a lot in your proof today. I was prepared to tell the lovely locum oncologist so if she hadn’t mentioned first that maybe you didn’t need a full year of hercpetin.