As I mentioned last week, the team running the Persephone trial have been good enough to answer some questions about Herceptin and the trial. Here they are. Even though I’m done with Herceptin, i found this really interesting. I hope you do too.
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-Why is Herceptin such a wonder drug?
Herceptin has proved to be [...]
I do always try to be fair on this blog: to report my experience on the cancer conveyer belt accurately , while trying to see the points of view of others. There are people I have praised to the skies, and people – St. George’s Oncology Department, I’m mostly looking at you – who I [...]
Over the months and years (OK, year and nearly-two-thirds) that I’ve been blogging about my dance with breast cancer, I’ve spent a lot of time on side effects and collateral damage. I’ve written about hair loss, scarring, sleeplessness, aches and pains, and my seemingly endless adventures in PICC territory. I’ve blogged constipation, swelling, weight gain [...]
Almost two months since the last dose of herceptin, and my body is changing. I no longer creak when I get out of bed in the morning. Going up and down stairs doesn’t hurt any more. My nose still aches but no longer bleeds. Poorly Stephanie is on the wane, and Well Stephanie is returning.
The [...]
Yesterday, we had an intelligent, helpful meeting with an intelligent, helpful oncologist. (Credit where it’s due.)
The gist of what we learned was this:
The original herceptin trial had 3 arms: no herceptin, a year of herceptin, and 2 years of herceptin. The survival rates from the 1-year arm of the trial were so dramatic compared to [...]
Today, Alan and I did what we said we’d do, and revisited our holding decision not to have any more herceptin. We agreed that we still felt it was the right decision…. kinda. We agreed that we were doing the right thing… probably. It felt right…. almost certainly. It was all a bit unsatisfactory, really.
Cue [...]
I know that herceptin is usually given for a year in the UK. I know that the decision about whether to permit herceptin to be made available through the NHS is down to NICE (the National Institute for Health and Clinical Excellence). I know that NICE has no say over the length of time that [...]
Cancer is like a brightly-lit, high-definition mirror. It shows you every little thing there is to know about yourself, good and bad. It shows you what you do well, what your strengths are, the good bits you didn’t know you had. It reflects the areas of your life that work, and makes it impossible to [...]
filed in
aches,
alan,
coping with cancer,
drugs,
family,
friends,
herceptin,
knitting,
learn from cancer,
only human,
side effects,
teeth,
training,
work
At the hospital on Sunday, you may recall, we had the Strange Episode Of The Understanding Oncologist. She had my infected PICC removed, said that it was possible that too much herceptin is given to patients and six months may be enough, and was very clear about what would happen next: she would discuss treatment [...]
I’d be lying if I said I bounced out of bed this morning saying, ‘Hurrah! Time for Herceptin the wonder drug! What a lucky bunny I am!’. After yesterday’s endless waiting at the hospital the last thing I wanted to do was head back there…. especially as I knew it would be for a long [...]