The first time I got an email from someone who thought that, in the Bah! book, I was being disrespectful to them as a person with stage 4 cancer, I felt sad, and a bit upset.
But I reminded myself that:
- I’d always known that not everyone would like it.
- I know that cancer is a sensitive subject and I know that my particular approach – especially the jokes – might not go down well with everyone.
- I wrote it with a good heart and a true desire to be of some small help to others dancing with cancer, and I trusted that.
- A lot of people read the book before it was published: people with cancer, people without it, kind strangers, friends, professional booky people. They gave honest feedback about what needed to change, and they supported the the book, and I trusted them too.
- I’d had more – lots more – emails from people who told me how much they liked the book; how much it had done for them; how my jokes made them laugh and laugh because someone was saying the unsayable.
Since then, there have been other emails, mostly from people with Stage 4 cancer who take particular objection to my ‘stage-4-means-don’t-buy-anything-with-durable-in-it’ joke. There have been reviews that make upsetting reading. And although it’s tempting to dismiss these, they have made me think.
This is what I think. Some thoughts conflict with others.
- I was never going to please all of the people all of the time.
- I wrote the Bah! book with people like me – the lucky ones, the ones who have had the disease caught early – in mind, so I can understand that it’s a disappointing/irrelevant read for those with more advanced, or more complex, cancers.
- If you are already having a crappy time, reading something that upsets you further is not good. It makes me think about this experience of mine.
- If you are upset enough that you can be bothered to email the author of the book and/or post a review, then that’s properly upset.
- I’m prepared to stick to my guns when it’s necessary. (See most blog posts about conversations with my oncologist.)
- I dislike intensely the idea that I could be making a bad time worse.
- I am afraid that the strongly-voiced views of the few will eclipse the many quieter thank-yous that Bah! has received, and that people who might genuinely benefit from the book will be put off reading it.
- Humour is tricky.
- I do find it difficult to believe that anyone who reads the Bah! book with an open heart and mind could genuinely think that I am trying to be malicious, offensive or hurtful, but I haven’t walked a mile in their shoes.
The upshot of all of this thinking is that I have emailed my editor at Hay House and asked if we can make a change in future editions of the book, and she has said yes. I will be taking out the ‘stage-4-means-don’t-buy-anything-with-durable-in-it’ joke and replacing it with something less jokey.
I think this is the right thing to do, because a small thing seems to be getting in the way in a big way, and that doesn’t make sense. If I was getting emails from people who objected to me talking about dancing with cancer, or using visualisations, then I would shrug and say, well, we are never going to agree. If I’d written a joke about cupcakes that people didn’t like, I’d do a bigger shrug and say, honey, if your existence is so stress-free that there’s space for a cupcake joke to upset you, I think you have a blessed life, and you might want to think about appreciating it a bit more.
But it’s a one-liner, and it’s cancer. So it feels like a change worth making.
(I am a little bit wobbly about all this. I am wobbly, even, about going public about it, but I figure that as I have happily shared all of the joyful bits of Bah!, I should be ‘fessing up to the more difficult parts too.)
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That’s very brave of you, Stephanie, and, I think, sensible. Stop the wobbles!
A typically classy response from a classy lady. It looks like someone in my family might be about to dance with cancer again and your book will help me to be there for them in a way I couldn’t have been before I read it. Thank you. X
(((hugs))) It sounds like you’re doing the right thing – and I don’t say that because I particularly have an opinion either way, but because you have obviously put a great deal of thought into it and are choosing the course that seems right, not just doing it to try and please more people. Good for you xx
Good response. This cancer thing that bonds many of us is a difficult one to get right for everyone. Good decision too.
I was recently chatting with a chap (whilst raising money for a cancer charity) and he told me about his diagnosis, then the next and the next… until he’d listed 5 rare cancers. Then he laughed and said ‘bet you can’t trump that?’. We both laughed.
Then we had to laugh again when someone told us not to make light of cancer as we didn’t understand what it was like to be diagnosed (assumption made as we were both young and, looking it seems, fit)!
Important to share the problems as well as the successes. If scarier. Black humour is a necessary coping strategy – but very VERY selective. No point it derailing the success of a wonderful book. wobblyhugs. Karen
Well done. And now you’ve done it, let it go xxx
Again I’m with Margi.
My understanding is that the Bah blog started out as a way if you honestly what was happening as you dealt having cancer, ( a way of Alan Ned and Joynot having to answe endless phone calls on how you all were).
Other people found the blog helpful, it became a book, soon to be two books. Lots of us read bits/all of it in advance, and were happy with the content. Other people have now read it and are not happy. It’s clear from the whole tone of the book that it was not poking fun or meant to hurts any ones feeling, but if the message of the book can be strengthened by removed a small section, do it. Then close that chapter.
On one set out the cause offence quite the opposite, you have now put right something that you can change great. And other very clever people are working to ensure that stage 4 cancer means something else.
I agree with Margi. As people who have danced with cancer we have learned to live in the moment. Draw a line and stroll on girl. xxx
Thank you, all of you, and thank you everyone who’s emailed and sent messages on Twitter.
Margi, when I saw your comment, I thought of all the years we’ve known each other, and I thought, yes: yes, that’s what I need to do. Thank you for understanding me so thoroughly and giving me exactly the advice that I need.
I’ve found today quite tiring and emotional. So I’m off to bed now, and when I wake, all this will be behind. And I’ll stroll on.