(… as we say in the north. Bairn = child, nowt = nothing. In the south, we say, if you don’t ask, you don’t get. Which has the obvious advantage of not requiring translation, but lacks a certain gutteral poetry.)
On Saturday, I wrote about what happened when I got the letter from the hospital about the appointment I’d missed. It tapped straight into my guilt-centre (wasting precious NHS resources) and my horror of being late, so I didn’t really question it.
Until I read this comment on Facebook from my friend Becky, who is a GP, medical consultant on my novel, and all-round lovely person:
I hear this ALL the time from patients. It drives me crazy. I don’t believe so many letters are “lost in the post”, I think its hospital admin error. Don’t accept a 4 month wait Stephanie, phone on Monday, speak to the consultants secretary and say you are not happy and want to be seen sooner. If she does not help, see your GP and get them to write or phone. They always magic an appointment from somewhere if you put on even a little bit of pressure (although it makes me mad that you have to) x
Which was soon echoed by the comments on the blog post. (Thank you, Rachel, Debby and Gaynor.)
So, I wrote this email, to someone at the hospital who I hoped would be able to help me. (I’ve taken names out.)
Hello. I hope you can help me.
On 7 March I came in for a routine mammogram – I was diagnosed with breast cancer in late 2008 at St George’s Hospital in Tooting, was treated there, and am now in the ‘watchful waiting’ stage – and assumed it was in advance of my appointment with Mr *, on 19th March. I was then surprised to receive a letter stating I had missed an appointment on 6 March with Mr * and a further appointment has been made for me on 24th July. Puzzled, I called the appointment line and was told that the appointment from 189th March had been moved to 6 March – something I didn’t get notification of.
Although I know that, in theory, if anything untoward appears on the mammogram results, someone will get in touch with me, I’m not very happy to have to ‘wait and see’ with the only end date in sight in July. Also, one letter to me – the change in appointment – has already gone astray, and I would hate for another, more important, one, to do the same.
Is there another way for me to get the results of the mammogram, or confirmation that there’s no sign of a cancer appearing, before the end of July? I am quite happy to discuss results over the telephone, or to come in to clinic.
I’m sure you appreciate that this is a sensitive issue and I’d appreciate your advice on the best way to proceed.
Within an hour, I had this reply:
Hi Stephanie
You will get a letter after your mammograms have been read by the radiologists – either saying all is ok or you will be given a much earlier outpatient appt to come back to. We don’t wait for out patient appointments to tell people their mammogram results – so I hope that reassures you. I have checked on the system and the results are not yet available – I would expect you to know your result within 3 weeks of the mammogram being done.
Please let me know if I can be of any further help!
Which prompted this from me:
Thank you so much for this – it’s just what I needed to know.
You know where to come if you have any problems!
So, within 3 weeks I will have the results of my mammogram. Which, it turns out, would always have happened – but now I know what the process will be. And when I am standing in my hallway with the letter in my hand, I’ll know that there’s no reason why it shouldn’t be good news, instead of thinking, well, here’s a letter from the hospital, ahead of my July appointment, and feeling the doom-clouds congregate in my heart. This is no small thing, my friends.
Today’s lesson, then, for you to learn along with me (although if many of you hadn’t already known it, I wouldn’t have learned it in my turn): don’t just accept something that doesn’t feel right. Ask. You don’t have to be horrible or difficult or angry about it. Asking doesn’t make you a bad patient or a time waster. You’re allowed to seek clarification. And once you have, you might sleep a bit more easily.
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This is a great post, Steph – mistakes happen, and can easily be rectified simply by asking the question. There is no need to be huffy – it’s so much easier for everyone if we assume mutual respect.
You embraced what my MIL cals your “inner American.” I would always phone or query something like this but something about British culture makes y’all less likely to do so. Glad you got it sorted!
I can’t believe you have to wait three weeks for a mammogram result! I get mine on the day. And you are quite right. My gp sent my ‘urgent’ referral by post (giving it to me to buy a stamp and send it!). I left it two days and phoned and got my own appointment. I was right to do so. Hand written referrals are deemed non-urgent and it would have been a minimum of 6 weeks..in which time it would have reached my lymph system.
I am pretty sure if there were anything untowards with your results they would get straight on to you. And they havent so take it that no news is good news and I will keep my fingers crossed for you xxx
3 Weeks for a mammogram result? Not acceptable. Here, I get them the same day and as a rule if not the same day, a letter with in the week of an all clear. At my ‘bad’ mammogram on a Friday, I got a call on that Monday to come back in for more pictures. Now I don’t get to leave until they read my scans and decide if they need more pictures. This is standard for where I am treated. Three weeks would turn me into a nervous wreck.
Hi Stephanie, I can understand how you felt and agree that writing a pleasant but firm letter is definitely the best solution. I have read your Bah book and it has brought me such strength and focus during my dance. Your words have helped me, my mother and my partner and friends to face this journey with a positive outlook and at times with real humour. Thank you. We are looking forward very much to September when we can read Thrive. Best wishes, Mel.
Dear Mel,
Thank you so much for leaving such a kind and supportive comment. It’s really good to know that the Bah! book is out there doing what I hoped it would do.
Be well,
Stephanie