Stephanie Butland

Blogging. Telling stories. Thriving.

The C-word, part 1

At the hospital on Tuesday, I waited for mammogram and ultrasound in a special waiting area with other gowned women having the same tests. There were usually 5 of us, although the individuals changed as we were called for one test then another. Everyone – including me, I suspect – looked nervous and a little bit agitated. We chatted, about the gowns and the tests and the hospital and the weather.

At one point, a brave soul said the unsayable and talked about feeling anxious; everyone else piled in. Hands twisted in laps. There was a tear or two. I thought: they all think that they are going to die. They all think that a diagnosis is going to be the end of them. So I did what, really, I’m here to do now: I identified myself as someone who had had a breast cancer and lived to tell the tale. I said:

Well, I’ve had breast cancer, and even though it wasn’t a lot of fun, I’m still here and I’m really well now.

It went down, my friends, like someone eating toasted kitten on a stick at an RSPCA conference. Everyone looked a bit embarrassed and grabbed the nearest magazine, apart from one woman who said something along the lines of, ‘Well, you look very well on it’, and then dived for a magazine as well.

I couldn’t work it out. I thought maybe I’d sounded as though I was showing off, or trying to get one over on anyone else. But I’ve talked about cancer to a lot of people, and…..the penny dropped. I realised that was it.

I’ve talked about cancer to a lot of people. I say ‘cancer’ like I say ‘toast’ or ‘wardrobe’ or ’supermarket’. It’s not a word that holds any fear for me, any more: it’s part of my life, part of what I am, and part of what I do. But when I replayed the conversation I’d had with that group of women, I realised they’d used phrases like, ‘if the worst comes to the worst’ and ‘if they find anything’ and ‘if it is bad news’. No-one had said cancer. No-one was ready to. And that’s fair enough.

I’m still not sure whether I should have said anything or not, though. I hope that if any of those women had a diagnosis of cancer – and statistically, at least one of them will have gone home clutching a bunch of leaflets and a soggy tissue – they will remember me, and take heart.

5 Responses

  1. caroline R says:

    Well at least they didn’t run screaming down the hall…

  2. Emily says:

    I think part of the problem is we don’t have the language yet to say I’ve had cancer and I’m fine/thriving now. A Stephanie has said we “fight” “survive” these words were adopted when the diagnois of cancer was a death sentance and I don’t think that the increase survial rates is relected yet in our vocabulary.

  3. Alan says:

    I think this is a very important issue you have raised here. Like you, I would have thought that your experience and reassurance would have been welcome. Maybe they were all at the pre-diagnosis stage and hoping the tests would find nothing?
    I would be interested in the views of other followers of your blog.

  4. Suzy Norman says:

    It’s hard to remember the fear that word held, isn’t it? Two years on, and out last Saturday, I casually explained to a friend of a friend I had had cancer. She looked concerned, but I realised this was the first time I’d just come out with it and her reaction didn’t quite match my feelings about it. It’s strange, but welcome, how that happens.

  5. Jody says:

    A very good point but you did the right thing. When I was diagnosed all I wanted to do was talk to someone who had survived. Someone will draw strength from your words, if not them then a friend or relative of theirs.
    I noticed people step back when I told them I had just beaten cancer, as if it were contagious. There’s not enough emphasis on how many survive this disease or even exactly what it is.